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Get wet
Pedialyte. I’ve started chugging at least two liters of it per day, in addition to what I was already drinking. It’s made a positive difference, so I wanted to pass on the POTSy tip. It helps my...
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Chickens and eggs
Looking for the cause(s) of Dysautonomia is a vastly complex ordeal. I have POTS as well as NCS/NMH, which can further muddy the waters. There is no way to be absolutely certain what the main cause...
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Shae Eclectique: year II and lessons learned
I have learned a great deal during my first year designing custom jewelry (as well as other art items, including paintings) at www.ShaeEclectique.com and I am truly grateful for the opportunity to...
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Valley News Today : NHS senior diagnosed with rare POTS disorder
Valley News Today : NHS senior diagnosed with rare POTS disorder. Good to see more exposure on this viscous condition (I have a severe case). Most of it is well put, but there are a few misleading...
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To Err is Expected
iBP Graph It is definitely a challenge getting a reading when my pulse pressure (PP) drops really low. No method or cuff will get a reading every time when it is really low. I was asked about how to...
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2013 Dysautonomia Patient Conference
Who’s coming to the 2013 Dysautonomia Patient Conference (July 6th-8th in DC)? Road trip! Confirmed speakers so far include Dr. Peter Rowe from Johns Hopkins, Dr. Satish Raj from Vanderbilt, Dr. Kamal...
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A typical POTSy moment…
Just a peek at one POTSy moment… Filed under: Autonomic Function, Dysautonomia, NMH/NCS/VVS, POTS, Syncope
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My Oasis
This retractable pool enclosure is like a greenhouse that you can open all the way up on a hot day, or keep closed and swim when there is snow on the ground! Swimming is my primary therapy, so being...
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The Great Disc Explosion (condensed version)
I haven’t spent much time on this topic. To be honest, I have a bit of PTSD flashback over how awful it was. I’ll give it to you straight…what we call The Great Disc Explosion of 2009 became Sooooooo...
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Lets Feel Better and Shae Eclectique Team Up for P.O.T.S Giveaway! | Lets...
Lets Feel Better and Shae Eclectique Team Up for P.O.T.S Giveaway! | Lets Feel Better. You can enter to win this bracelet…details and entry at the link above Posted with Blogsy Filed under:...
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POTS 101
POTS 101: a fellow POTSie blogger’s very clear explanation of POTS. Great foundation! via POTS 101. Filed under: Advocacy & Awareness, Autonomic Function, Dysautonomia, POTS, Syncope Tagged: POTS
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And the Winner Is….
Congratulations to Misty, winner of the Lets Feel Better Giveaway! Visit the link below for the full story! And the Winner Is…. | Lets Feel Better. Filed under: Dysautonomia
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Living with Bob (Dysautonomia): Hard
This…every word…is exactly what I experience so much…I could just bawl reading Michelle Roger write so precisely what it is to be me…I don’t think I’ve ever felt understood in this way about what this...
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Time Eclectique
I am cross posting an announcement about status of jewelry orders from my Facebook page: Delays continue a bit longer as I adjust to getting back into my aqua therapy along with some changes in...
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Therapy Time
I need to go swim now. I desperately want to go swim now. I wish I was not in this much pain, though. I wish I had a tiny bit of energy. Moving seems a monumental task. Breathing is this incredible...
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Saltwater beneath a velveteen sky
Oh. Em. Gee. That was…amazing! I lay here, exhausted but content. I was barely able to dry off and crawl into bed with a liter of pedialyte…but I am so utterly peaceful and blown away. I am so glad I...
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Time Management Old School Industrial Style
As you may know, I’ve been struggling with the ever changing ‘new norm’ and attempting to recover from a setback that affected (among other things) the routine flow of orders shipping from my little...
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Atrophy: wasting away, wasting time.
About Shae Eclectique If you've been following the saga of my little handmade jewelry shop, Shae Eclectique, you know I've fallen far behind in the last several months, and that things have become more...
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Blood Pressure Chart – Normal Blood Pressure Range
Blood Pressure Chart – Normal Blood Pressure Range. Interesting information on blood pressure; good basic background reading with charts for the newly diagnosed POTSie/Dusautonomia patient. Posted with...
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